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Individual stories help us demonstrate the importance of our work and can inspire other people in the same situation.  

If you, your child, or someone you know has been affected by a condition that we are currently funding research into, such as cerebral palsy or meningitis, please contact us to share your experience.

We work very hard to ensure stories are told sensitively. And we will, of course, check on each occasion before using any story that has been submitted to us.

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Grace’s Story

After Grace was born, she started reaching all the important milestones, but things began to change between nine and 12 months. Other babies started crawling, walking and talking but Grace didn’t. Although nobody knew it at the time, she was showing the signs of Rett syndrome. Read her story in this Touching Lives article.



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