Sickle cell disease


Sickle cell disease covers a group of inherited blood disorders which affect mainly Afro-Caribbean people although sufferers may also come from parts of Europe, South America and the Middle East.

Sickle cell disease causes severely painful ‘crises’ brought on by a variety of factors including stress, dehydration and cold exposure.

In the UK, it is estimated that there are more than 6,000 adults and children with Sickle Cell Disease (SCD) who are mainly of African and Caribbean descent .
In the last 20 years, Action Medical Research has awarded more than £500,000 in grants for projects specifically related to sickle cell disease and we have also been involved in raising awareness of this potentially fatal disorder.

A recent award of £63,700 has been made to Cranfield University, Bedfordshire and The Babraham Institute, Cambridge to investigate a different potential treatment for sickle cell disease.

Celebrity supporters - Mark Beaumont

Mark Beaumont is a supporter of Action Medical ResearchMark Beaumont is the current Guinness World Record holder for the fastest circumnavigation of the world by bicycle and has endorsed our London to Paris bike ride

Riley's story

Riley RuncimanRiley Runciman has a severe form of cerebral palsy that causes full body spasms. Read about a seating project  that could transform Riley's life. You can also view a video about the seating project