Real stories

Tom’s story

Duchenne muscular dystrophy

Tom has Duchenne muscular dystrophy, a rare and fatal condition that causes muscle weakness, and a relentless deterioration in physical abilities.

Read more

Aiden's story

Hypoxic-ischaemic encephalopathy (HIE)

Alex and Daniel's story

Smith-Lemli-Opitz syndrome (SLOS)

Joshua's story

Jeune syndrome

Jade's story


Kylie's story

Primary ciliary dyskinesia (PCD)

Joshua's story

Necrotising enterocolitis (NEC)

Jack's story

Obstructive sleep apnoea

Luke's story

Auditory processing disorder (APD)

Cieran's story

Meningitis B

Scarlett's story

Hyperekplexia (Startle disease)

Tito's story

Cerebral palsy

Daisy's story


Help us spread the word