Useful links

Here are a few links we hope you will find useful. We are not responsible for the content of any of these sites.

Health information

We do not provide medical advice. If you would like more information about a condition or would like to talk to someone about your health, contact NHS Choices or speak to your GP.

Net Doctor
Information on prevention, treatment and management of diseases and conditions.
NHS Choices
Information for people to make choices about their health.
Patient UK
Medical information for doctors and patients.
Self help UK
Directory of self-help organisations, patient support groups and charities in the UK that provide support, guidance and advice to patients, carers and their relatives.
Sense about Science
Sense about Science is a charitable trust that equips people to make sense of scientific and medical claims in public discussion.

Organisations we’re working with

MS Society
Charity for people affected by multiple sclerosis (MS).
Action Medical Research and the MS Society are together funding a study which is examining the early symptoms in children.
The Brain Tumour Charity
Charity for people affected by brain tumours.
Action Medical Research and the Brain Tumour Charity are together funding a study to develop a way to tailor treatment more closely to the needs of each individual child.

Other useful organisations

AMRC
A membership organisation of the leading medical and health research charities in the UK.
Ataxia UK
Ataxia UK is a charity working across the UK supporting people affected by ataxia.
Autistica
Autistica is the UK's leading autism medical research charity – committed to funding groundbreaking research that will transform lives.
The Cystic Fibrosis Trust
The only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them.
Epilepsy Society
The UK's leading epilepsy medical charity working for everyone affected by epilepsy.
Ichthyosis support group
The Ichthyosis Support Group (ISG) is a network of parents, sufferers and medics.
Meningitis Research Foundation
The Meningitis Research Foundation funds research to prevent meningitis and septicaemia, and to improve survival rates and outcomes. The Foundation promotes education and awareness to reduce death and disability, and gives support to people affected.
Meningitis Now (formerly the Meningitis Trust)
The Meningitis Trust improves the lives of people affected by meningitis and provides professional meningitis support and aftercare services in the UK.
NIHR MCRN
The NIHR MCRN encourage children and families to work with researcher professionals and clinicians and get actively involved in the different stages of research and associated activities.
Our Saving Grace
The group organises teams of befrienders to help families who have lost one or both of their twins to twin to twin transfusion syndrome (TTTS).
Perthes Association
The Perthes Association is a national charity helping families of children suffering from Perthes diseases and associated conditions.
Sands
Stillbirth and neonatal death charity.
Tuberous Sclerosis Association
The Tuberous Sclerosis Association provides support to families affected by TS across the UK.