Useful links

Here are a few links we hope you will find useful. We are not responsible for the content of any of these sites.

Health information

We do not provide medical advice. If you would like more information about a condition or would like to talk to someone about your health, speak to your GP or contact NHS Direct (0845 4647 or www.nhsdirect.nhs.uk)

Net Doctor
Information on prevention, treatment and management of diseases and conditions.
NHS Choices
Information for people to make choices about their health.
NHS Direct
Health advice and information.
Patient UK
Medical information for doctors and patients.
Self help UK
Directory of self-help organisations, patient support groups and charities in the UK that provide support, guidance and advice to patients, carers and their relatives.

Organisations we’re working with

MS Society
Charity for people affected by multiple sclerosis (MS).
Action Medical Research and the MS Society are together funding a study which is examining the early symptoms in children.

Other useful organisations

AMRC
A membership organisation of the leading medical and health research charities in the UK.
Ataxia UK
Ataxia UK is a charity working across the UK supporting people affected by ataxia.
Ichthyosis support group
The Ichthyosis Support Group (ISG) is a network of parents, sufferers and medics.
Meningitis Research Foundation
The Meningitis Research Foundation funds research to prevent meningitis and septicaemia, and to improve survival rates and outcomes. The Foundation promotes education and awareness to reduce death and disability, and gives support to people affected.
The Meningitis Trust
The Meningitis Trust improves the lives of people affected by meningitis and provides professional meningitis support and aftercare services in the UK.
National Society for Epilepsy (NSE)
The UK's leading epilepsy medical charity working for everyone affected by epilepsy.
Perthes Association
The Perthes Association is a national charity helping families of children suffering from Perthes diseases and associated conditions.
Sands
Stillbirth and neonatal death charity.