Multiple Sclerosis Research | Action Medical Research

Multiple sclerosis

Evidence suggests around three to 10 per cent of people with multiple sclerosis (MS) suffer their first symptoms during childhood. Children’s symptoms include fatigue, dizziness and problems with eyesight, balance, memory and concentration. These symptoms result from damage to the nervous system and disrupt both schooling and family life - there is no cure. Children suffer similar symptoms to adults. At first, their symptoms might come and go, but over time they develop permanent disabilities.

We are funding research to help children with multiple sclerosis.

Pelizaeus-Merzbacher disease – finding new treatments

Research date: 2 January 2018 - 1 January 2019
Grant amount: £84,447.00

Pelizaeus-Merzbacher disease (PMD) is an inherited condition that affects a child’s brain and spinal cord. Although extremely rare – with estimates suggesting it affects between two and five of every million male babies born – it can be devastating.1 Children can experience a range of symptoms, including difficulties with movement,...

Pelizaeus-Merzbacher disease: developing a new way to study and eventually treat this disabling, rare disease of childhood

Research date: 1 December 2016 - 30 November 2017
Grant amount: £69,604.00

Children with a rare, genetic condition called Pelizaeus-Merzbacher disease (PMD) may one day benefit from research by Professor David Rowitch of the University of Cambridge. Children with PMD can experience a range of disabling symptoms, including muscle stiffness, difficulties with movement, balance and speech, and delayed learning. Sadly, there’s...

Other related information

First UK childhood MS incidence study published

Posted: 18 June 2012 11:45 am
Researchers funded by Action Medical Research and the MS Society have found the UK has the highest reported incidence rate in the world of children who experience their first MS-like attack in childhood. Every year in the UK around 125 children – that’s ten aged between one and 15 in every million – will experience what’s thought...

My world turned upside down

Posted: 12 October 2009 08:45 am
As Action Medical Research joins forces with the MS Society to fund the first major UK scientific study into how multiple sclerosis (MS) develops in children, we hear from one family about the impact of the disease.When Rachel Courtney said she had a ‘fuzzy’ head and felt exhausted the day after a family party, her mum Maggie thought nothing of...

Childhood MS under the spotlight at Children’s Hospitals

Posted: 24 April 2009 08:26 am
THE first major UK scientific study into multiple sclerosis (MS) in children will begin this week marking a significant step forward in the understanding of the debilitating condition. The paediatric MS study led by Birmingham Children’s Hospital will follow a group of children for five years and will cost around £400,000, jointly funded by...
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