Open heart surgery at just eight hours old.
Jessica pictured above, has hypoplastic left heart syndrome (HLHS), a rare potentially fatal heart condition which affects one baby in 5,000. She had her first open heart surgery when she was just eight hours old then another at three months, spending her first Christmas in hospital.
Action is funding research which will create virtual 3D models of babies' hearts. These will be used to select the best surgical technique for each baby, with the aim of increasing chances of survival.
Jessica had her first open heart surgery when she was just eight hours old, then another at three months, spending her first Christmas in hospital.
Babies' heart research
We're funding research which will create a virtual 3D model of babies’ hearts, to provide more tailored surgery with the aim of increasing survival rates.
Meet the researcher
Researcher Dr Pablo Lamata explains how his Action funded work developing 3D computer models of babies’ hearts hopes to improve survival rates for babies…
Why fund research?
Medical research to help children is poorly funded in the UK. With your help we’ve a critical job to do in helping fill this gap to protect children.
View a short video of Jessica's journey as a heart warrior, from major heart operations to the happy smiley girl she is today.
A heart parent's story
Jessica's mum Louise shares her emotional and inspiring thoughts on what it’s like to be a parent of a ‘heart warrior’.
Find out about the groundbreaking medical research that Action is currently funding for babies and children.
Treasure the moments
To celebrate Mother’s Day Louise, Jessica's mum, shares her thoughts on the wonder and worry of her very special ‘mummy journey’.