Issue Six | Action Medical Research
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Francesco

Estimates suggest around one in every 400 children in the UK has cerebral palsy and around 2,000 babies are diagnosed with cerebral palsy every year. These young people will experience lifelong difficulties with movement and co-ordination, and in some cases they may also have other difficulties, such as learning disabilities.

We’re looking at developing a systematic way of describing children’s looking behaviours in relation to eye pointing and communication. We’re doing that in two ways. We’re developing a descriptive scale that will be based on observation of children in everyday situations, and we’re also exploring the use of eye tracking technology to get very objective and precise measures of children’s looking behaviours in different situations.

Communication is the way we show who we are it’s the way the world works. That makes it a really high priority for research. Good research in this area has the potential to make a very significant and long lasting impact on children and their families. It’s your support that is helping life changing research like this happen. Thank you.

Hello, I’m Action Hero Dr Michael Clarke, and thanks to support like yours I’m now on a mission to help severely disabled children like Alfie.

It’s an exciting time. We’ve developed a new way to assess and classify how children with very severe cerebral palsy are using their looking skills to communicate and engage with the world around them.

We hope that with this research we’ll have a much clearer idea of how best to support children like Alfie right now so that they can better communicate and connect with people. This could make a real difference for families. You’re helping life changing research like this happen.

You can watch the full length video of Alfie’s story below.

Click Here

Action Hero Dr Adeline Ngoh

Take Action

If Alfie's story has inspired you to do more, then you can take action:

Share Alfie's story with your friends and family and help spread the word about Action Medical Research

Do an event for Action

Fundraising is a great way to spread the word and support us - and you don't have to be active to take part! There are fundraising ideas for everyone. Find out what's going on in your area or you can even set up your own event.

Volunteer

Become an Action volunteer in your community! Being a volunteer could involve anything from speaking at an event to cheering on our marathon runners.

Prof Peet

Remember good research has the potential to make a very significant and long lasting impact on children and their families.

Your ongoing support to Action gives hope to families like Alfie’s.

Research like mine is only possible with support such as yours.

Thank you

Any questions? Want to know more? You can always call us on 01403 210406 (Mon to Fri, 9-5).

You can keep an eye on our Action Heroes and discover more about us by following us on Twitter and Facebook:

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