Organisations we work with | Action Medical Research

Organisations we work with

Action works with other organisations where this helps move forward important medical research for children.

Our gold standard peer review process is highly regarded and other charities often join us to fund research recommended by Action’s expert Scientific Advisory Panel. We teamed up with Great Ormond Street Hospital Children’s Charity and are jointly funding 13 project grants from across the UK. We are also currently working The Brain Tumour Charity, to fund a study to identify the best treatment for children with brain cancer, as well as Sands and New Zealand based charity Cure Kids, to fund a project on stillbirth. We are working with Neuroblastoma UK to fund a study to help develop a new treatment for children with cancer and another project to help children's immune systems to fight cancer and the Cystic Fibrosis Trust to fund a study into cystic fibrosis and chest infections and another into cystic fibrosis and spinal muscular atrophy. We have teamed up with the Chartered Society of Physiotherapy Charitable Trust and are jointly funding a project to help young people with cerebral palsy and another to help children with developmental coordination disorder.

We are also working with the British Paediatric Neurology Association (BPNA) to co-fund a Research Training Fellowship award in the field of childhood neurological diseases, including muscle disease and are also teaming up with Sands to fund a Research Training Fellowship in 2018 into the prevention of stillbirth.

We are working with Borne, to fund up to £500,000 a year of new research from 2017-19 to prevent death and disability in babies and children as a result of pregnancy complications and premature birth. We have  joined forces with Action for A-T  to co-fund up to £500,000 of research in 2018 to tackle the rare degenerative condition, Ataxia Telangiectasia. We have also teamed up with the Myotubular Trust to fund a UK based project grant in 2018 into myotubular myopathy.

We are also working with the Scottish Government Chief Scientist Office (CSO) as well to jointly fund two projects - one to help improve speech therapy for children with cleft lip or palate and one on vision in children born to mothers taking methadone in pregnancy

We previously funded a four year project developing a new, computerised way of interpreting MRI scans of babies’ brains together with the Engineering and Physical Sciences Research Council and worked with the MRC to jointly fund a Clinical Research Training Fellow.

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