Touching Lives | Action Medical Research

Touching Lives

September 2016

Here at Action we’re very proud of the research we fund to help babies, children and young people. This year we’ve had two wonderful opportunities to showcase this important work at prestigious events, one of them held at Buckingham Palace no less (which you can read about here).

Of course, it’s thanks to supporters like you that we are able to fund life-changing medical research and this new issue of Touching Lives highlights more of the vital work you are helping to make possible. It illustrates the hope being given and progress being made, thanks to your generous donations.

Our cover star Kira reminds us how, sadly, life can change in an instant. A terrible accident as a toddler caused major brain injury and, despite making an amazing recovery, it has left her with long-term disabilities. We’re currently funding two projects to help children who have survived serious head injuries. 

We hope you enjoy reading about how, together, we are making a difference for sick babies and children.

PS Please don’t forget to order your charity Christmas cards from us. Every single penny raised from their sale comes straight to Action!

April 2016

Welcome to our latest issue of Touching Lives. Spring is a time of new beginnings and we have lots of fresh, exciting things happening here at Action – our new Fight for Little Lives message, a new weekly lottery and, most importantly, new research being funded thanks to our wonderful supporters and fundraisers.

We’re currently funding research into a range of conditions, including pre-eclampsia – the life-threatening pregnancy complication that saw our beautiful cover star Emily delivered six weeks early. 

Some of our recent grants have been funded in partnership with Great Ormond Street Hospital Children’s Charity. By working together we are able to support more vital research than we could have funded alone – offering hope to more sick babies and children.

Everything we do is a team effort and our supporters play the most crucial part. There are many different ways to help us raise money. Our summer Cream Teas event is a nice, easy one. Running a marathon, a little bit tougher!

However you choose to support us, we hope you find this issue an inspiring read.

September 2015

Welcome to our autumn/winter issue of Touching Lives. We hope you’ll enjoy reading all about our latest research to help sick babies and children, and the fundraising that makes this vital work possible. Your support plays such a crucial role, so please feel proud to share in our good news.

We have exciting updates to share from three research projects that are set to improve the way the most vulnerable new arrivals are cared for. You can read about the HeartLight sensor, a potentially life-saving piece of equipment to help babies who are struggling to breathe at birth. Also featured is Daisy, who took part in Action-funded trials of this device. 

Success stories are wonderful but there are always many more children who still need the help and hope that medical research can bring. The beautiful boy in our lead story is Alfie and, sadly, behind his lovely smile is a story of struggle and pain. He has severe cerebral palsy, affecting all his limbs, and requires round-the-clock care. 

As summer draws to a close, so does our main challenge events season. If you’re looking ahead to next year’s activities and need inspiration then read our running midwife, Michelle’s story.

Of course, you don’t have to break into a sweat to raise money for us, as our cream teas fundraiser shows. And another easy way to show your support is by ordering your Christmas cards from us. We have some stunning designs and every penny raised comes straight to Action!

Thank you, as ever, for reading.

April 2015

Welcome to our Spring/summer issue of Touching Lives – where you can read about our work helping sick babies and children and the fantastic fundraising support that makes this vital research possible.

Our cover story is all about one very tiny life. Samuel was born early at just 30 weeks. Now three months old, although he is still quite small, he is doing well. New mum Jo explains what a new test to help prevent babies from being born too soon means to her family.

You can also find out how tiny and vulnerable babies can now be saved from losing their sight, and read about how research funded by Action is enabling doctors to unlock the mystery of the rare and potentially fatal illness Startle disease. We’re happy to report that little Scarlett went home safe and sound after her diagnosis at just two weeks old. And, following an Action funded study, many more babies’ lives can now be changed for the better.

Brave parents Mark and Amanda share their experience of another rare disease, Jeune syndrome, which affects their son Joshua. The family is heartened by the work of our Research Training Fellow Dr Miriam Schmidts who has identified new genetic causes for this devastating condition.

Inspired by our work after his son was born too early and developed a life-threatening bowel condition, keen cyclist Chris is riding all the way to Paris to raise funds for Action Medical Research – accompanied by his 65-year-old father.

As spring turns to summer, our supporters are taking to country lanes and city parks, climbing muddy assault courses, crossing the Channel, walking, cycling and running for Action. Every effort helps us save and change the lives of babies and children. But many people help us in quieter ways, too. From helping out in the office to organising major events, our volunteers are an inspiring and essential part of Action. Thank you all!

September 2014

Welcome to our Autumn/winter issue of Touching Lives – where you can read about our work helping sick babies and children and the fundraising and support that makes vital research possible.

Isabella, who lights up our front cover, has a fighting spirit, a warm heart – and a baby brother to play with. But tragically, parents Laura and Ryan lost her identical twin sister Grace at birth through Twin-twin transfusion syndrome. In this issue, we discuss a new treatment being developed that Action is funding, and honour the inspirational bravery of this young family.

You can find out how research that Action funded back in the 1970s means that children like Emma, aged two, are now being saved from lifelong learning disability. New research also includes work to help children like Tom, six, who has Duchenne muscular dystrophy. A new medicine being tested by researchers at Newcastle University could slow down the progression of this devastating, fatal disease. We talked to Tom’s mum Rebecca, who explains what hope means to her family.

Our celebrity supporters have been busy again: TV chef Lesley Waters fronted this year’s Action Cream Teas in a box fundraiser; our cycling events were sprinkled with stardust as big names from the worlds of comedy, TV and sport lent us their support; and in November our friendly, furry mascot Paddington™ stars in his very
own movie! 

Of course, you don’t need to be famous (or furry) to get involved and make a difference. Why not lend a hand as a community volunteer? Volunteer Development Manager Jane Charlton, who's based at our head office in Sussex, offers an insight into volunteering for Action.

It won’t be long until the leaves start to fall, the air cools and thoughts turn to the festive season. Ordering your Christmas cards from Action is a great way to support our work, so do check out this year's wonderful, contemporary designs. Every single penny raised comes to Action, helping us to help sick babies and children, and that’s something to celebrate at any time of year.

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