Touching Lives - April 2014 | Action Medical Research

Touching Lives - April 2014

Welcome to our spring/summer issue of Touching Lives, packed full of our latest research and fundraising news.

If you have children or grandchildren then I’m sure you’ll remember seeing those first ultrasound scan pictures of a new baby. But sometimes a clearer image is needed, especially if a problem is suspected. In this issue you can find out how Action funding has helped doctors develop advanced fetal MRI scanning techniques. These can be life-saving for babies at risk.

Our cover feature is on brothers Alex and Daniel, who have the rare disease Smith-Lemli-Opitz syndrome. Their early years were especially difficult as their mum, Victoria, didn’t know why they were suffering so many health problems.

We also have updates on new research we’re funding – none of which would be possible without you, our dedicated supporters. This includes work to help children with brain cancer, like 11-year-old Iona who was diagnosed with a tumour when she was just five.

As we head into summer, now is the perfect time to get active. Please read the heart-felt story of how one family used running for Action to channel their grief at the loss of their baby son into something positive. We hope their inspiring story might motivate you to take part in one of our many challenge events.

Our celebrity friends have also been busy. We've got all the latest news on what they’ve been up to for Action and find out more about our fantastic summer Cream Teas fundraiser, which is this year backed by TV chef Lesley Waters.

Finally, this issue also includes a reader survey. Your views are important to us and we are always keen to know what you think, so I hope you’ll be able to spare a few minutes to complete this. You can complete the survey online here.

Best wishes for a happy Easter and a great summer!

Help us spread the word