From the moment Emma Thornton was born, she loved being active. As an agile baby and toddler she excelled in climbing, was well coordinated and as she got older loved running, swimming and trampolining. Tragically, at six years old she was diagnosed with Perthes’ disease – a painful illness affecting the hip joint that brought an end to her love of sports. Read here how she and her family have coped.
Action Medical Research has funded numerous projects that have helped change the lives of children. One project in Oxford has enabled surgeons, doctors and scientists to develop a way to assess foot deformity to help improve treatment and minimise pain for children who have problems walking.
Action is proud to be working with some fantastic organisations who have been getting active to help save and change children’s lives.
TV doctor Dawn Harper, best known as a presenter of Channel 4’s hit show Embarrassing Bodies, has long been a loyal supporter of our work. She caught the cycling bug when she took part in Action London to Paris four years ago and has got on her bike for us every year since. This year, she rode the Action DIVA Warwickshire.
Richard Hughes, the drummer from Keane, rode Castle 100.
Wildlife presenter Hayden Turner was at the Aberdeen Ladies’ Lunch.
TV presenter Davina McCall rode Action DIVA Sussex and will host the Dine with Davina lunch in November.
Paddington Bear has been involved with the charity for over 36 years and continues to help in so many ways. Fans of our furry mascot can now download a fun new app and buy a personalised Paddington T-shirt to help raise funds for Action.
Think you’ve ticked off the box marked Action London to Paris? Think again. New for 2014 we’re launching an exciting new Action London to Paris adventure – our 24-hour challenge.
Readers of Touching Lives may remember Grace, who featured in our spring 2010 edition. Grace is now 12 and was diagnosed with the serious and incurable developmental condition Rett syndrome when she was just four years old.
Research funded by Action has discovered some of the genes that can cause devastating inherited brain diseases in children that lead to disability and even death.
We are delighted that long-standing supporter Wendy Parker has remembered Action with a gift in her will. Wendy, who lived in Leeds, died in April 2013, generously leaving us over £660,000 – one of the largest legacies ever left to the charity.
Wendy’s association with Action was long and varied and included an opportunity for her to see our work up close when her brother Colin, an eminent dental surgeon, was awarded a research grant in 1994. The aim of Colin’s project was to produce a mouth-operated switch for severely physically disabled people to operate environmental controllers and computers.
Nina McConnell and her husband had been married for 16 years when they had their first son Jake, following a problem-free pregnancy. They decided to try for another child but Nina had two miscarriages before falling pregnant again.
If an adult has a heart defect, this can usually be treated with a stent – a small tube inserted into a blood vessel. Stents help to keep blood flowing and prevent weak blood vessels from bursting.
When a baby is born with a heart defect – known as congenital heart disease – a stent can be risky, as they can cause a blood clot or tear a vessel. Also, the stent doesn’t grow as the baby grows and its blood vessels get bigger.