Touching Lives - September 2014 | Action Medical Research

Touching Lives - September 2014

Welcome to our Autumn/winter issue of Touching Lives – where you can read about our work helping sick babies and children and the fundraising and support that makes vital research possible.

Isabella, who lights up our front cover, has a fighting spirit, a warm heart – and a baby brother to play with. But tragically, parents Laura and Ryan lost her identical twin sister Grace at birth through Twin-twin transfusion syndrome. In this issue, we discuss a new treatment being developed that Action is funding, and honour the inspirational bravery of this young family.

You can find out how research that Action funded back in the 1970s means that children like Emma, aged two, are now being saved from lifelong learning disability. New research also includes work to help children like Tom, six, who has Duchenne muscular dystrophy. A new medicine being tested by researchers at Newcastle University could slow down the progression of this devastating, fatal disease. We talked to Tom’s mum Rebecca, who explains what hope means to her family.

Our celebrity supporters have been busy again: TV chef Lesley Waters fronted this year’s Action Cream Teas in a box fundraiser; our cycling events were sprinkled with stardust as big names from the worlds of comedy, TV and sport lent us their support; and in November our friendly, furry mascot Paddington™ stars in his very
own movie! 

Of course, you don’t need to be famous (or furry) to get involved and make a difference. Why not lend a hand as a community volunteer? Volunteer Development Manager Jane Charlton, who's based at our head office in Sussex, offers an insight into volunteering for Action.

It won’t be long until the leaves start to fall, the air cools and thoughts turn to the festive season. Ordering your Christmas cards from Action is a great way to support our work, so do check out this year's wonderful, contemporary designs. Every single penny raised comes to Action, helping us to help sick babies and children, and that’s something to celebrate at any time of year.

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