In this issue of Touching Lives, we hear about Grace who has a rare, devastating, developmental disorder that causes profound physical and learning disabilities. Mum Gwenda explains what life is like caring for a child with Rett syndrome. Our pioneering work with gene therapy may help shed light on new ways to treat this condition and provide hope for girls like Grace.
We hear why TV’s Dr Dawn Harper is supporting Action Medical Research and we launch Walk for Tiny Lives, a series of sponsored walks designed for mums, dads, grandparents and, of course, children.
In this issue of Touching Lives, we meet two youngsters who are battling conditions that normally affect adults. Rachel was diagnosed with multiple sclerosis when she was 13, and little Alfie has had multiple strokes since he was two-and-a-half. Read their inspirational stories.
We also feature new research projects and fundraising news including our London to Paris bike ride, a party with Paddington and latest initiative Wellies to Work.
In this issue of Touching Lives, Lee and Mandy Runciman talk about an Action Medical Research project that’s giving hope to children like their son. Five-year-old Riley suffers from a severe form of cerebral palsy, which means he struggles to control his arm and leg movements, and cannot sit comfortably on a normal chair. We are funding research into a novel seating system that could transform life for children like Riley.
In this issue of Touching Lives, we meet Amy Ironmonger who was diagnosed with multiple sclerosis at 18. She knew little about the condition back then, but is now managing her medication, continuing to work and enjoying a busy social life like her friends. She even finds time to fundraise for more research into the illness.
Read about our latest medical research projects and the real stories of people who could benefit, or already have benefited, from the work our supporters are funding.