Francesco Appeal | Action Medical Research

“We felt such loss - our little boy’s personality changed in just a matter of weeks.”

Donate now

Help end the silence for children like Francesco

When Francesco, pictured above, started school he was an excited, happy, sweet natured child who was bilingual in English and Italian.

But within weeks everything changed.

Francesco, was diagnosed with Landau Kleffner syndrome. It’s an extremely rare disease, which is thought to affect one child in 300,000.

Tragically, Landau Kleffner syndrome robs children of the ability to talk and even understand speech.

So little is known about what causes this rare disease which is why Action Medical Research is funding valuable research into Landau Kleffner syndrome.

Landau Kleffner syndrome is just one of over 6,000 recognised rare diseases and we urgently need your help to keep funding valuable research like this.

Donate Now

What is Landau Kleffner syndrome?

Landau Kleffner syndrome is a rare form of epilepsy which occurs in children usually between the ages of three and nine years old. These children lose the ability to talk and understand speech, which can have devastating consequences. Many also experience seizures.

Sadly, children with Landau Kleffner syndrome can lose confidence and become frustrated or withdrawn.

Many develop behavioural problems, and some develop symptoms within the autistic spectrum. Children’s education and social interactions can also be severely affected.

View our infogrpahic about Landau Kleffner syndrome. Landau Kleffner syndrome infographic

We’re supporting Rare Disease Day on 28 February. This aims to raise awareness of all rare diseases which together affect thousands of children across the UK.

It’s too many. Far too many. Research can put a stop to this.

Fight for children. Fight now.

Help us spread the word