We are funding over 75 projects at leading hospitals, universities and specialist centres across the UK. Projects we’ve funded over the past 12 months include research into pregnancy complications, neuroblastoma (a childhood cancer), leukaemia, cerebral palsy, cystic fibrosis, epilepsy, Tourette syndrome and some rare inherited conditions such as X-linked lymphoproliferative disease.
- Pelizaeus-Merzbacher disease: developing a new way to study and eventually treat this disabling, rare disease of childhood. £69,604 grant awarded for a one year research project. Led by Professor Rowitch, University of Cambridge.
- Obesity in children - is there a link with diet and physical activity of mothers during pregnancy? £101,300 grant awarded for a one year research project. Led by Professor Poston, King’s College London.
- Helping children in special schools to overcome vision problems. £189,315 grant awarded for a three year research project. Led by Professor Saunders, Ulster University.
- Neurodevelopmental disorders - investigating common pathways. £197,474 grant awarded for a three year project. Led by Dr Jungbluth, King’s College London.
- Developmental coordination disorder - understanding how young people learn new movements. £191,950 grant awarded for a 30 month research project. Led by Professor Dawes, Oxford Brookes University and University of Oxford. Action Medical Research and the Chartered Society of Physiotherapy Charitable Trust are jointly funding this project.
- Pregnancy complications including pre-eclampsia and small-for-gestational-age pregnancies. £158,886 grant awarded for a 15 month research project. Led by Mr Lees, Imperial College London.
We teamed up with Great Ormond Street Hospital Children’s Charity to jointly fund 13 different projects. Through this partnership we’re aligning our efforts to do more to tackle the challenges disease and disability present for children by funding some of the best medical research across the UK.
- Neuroblastoma: helping children’s immune systems to fight high-risk cancers £197,027 grant awarded for a 30 months’ research project. Led by Professor Anderson, UCL Institute of Child Health and Great Ormond Street Hospital, London.
- Tourette syndrome: why are some children more prone to tics? £97,651 grant awarded for a two year research project. Led by Professor Jackson, University of Nottingham.
- Tackling drug-resistant infections in seriously ill children £62,911 grant awarded for a one year research project. Led by Professor Breuer, University College London.
- Cystic fibrosis and spinal muscular atrophy – prenatal diagnosis £198,634 grant awarded for a two year research project grant. Led by Professor Chitty, Great Ormond Street Hospital, London.
- X-linked lymphoproliferative disease: a step closer to developing a cure £165,929 grant awarded for a two year research project. Led by Professor Gaspar, University College London.
- Neuroblastoma: helping children who are at greatest risk from this potentially life-threatening cancer £196,219 grant awarded for a three year research project. Led by Professor Tweddle, Newcastle University.
- Neurofibromatosis type 1: spotting early signs of autism and ADHD in babies £199,987 grant awarded for a three year research project. Led by Professor Johnson, Birkbeck, University of London.
- Epilepsy: a new way to treat children with uncontrolled seizures £164,253 grant awarded for a two year research project. Led by Dr A Valentin, King's College London.
- Searching for better treatments for children with a rare metabolic disease £177,915 grant awarded for a 28 months’ research project. Led by Professor N D E Greene, University College London.
- Cerebral palsy: helping severely disabled children who use their eyes to communicate£88,438 grant awarded for a 18 months’ research project. Led by Dr M T Clarke, Great Ormond Street Hospital.
- Personalising surgery for babies with a serious heart disease £102,593 grant awarded for a two year research project. Led by Dr P Lamata, King's College of London.
- Head injuries: could new brain scans help guide treatment and improve children’s outlook for the future? £199,814 grant awarded for a three year research project. Led by Professor D J Sharp, Imperial College London.
- Acute lymphoblastic leukaemia: making treatment even better £199,465 grant awarded for a three year research project. Led by Dr O Williams, UCL Institute of Child Health.
We are also funding a project on preventing preterm labour.
- Premature birth: delaying early labour £189,886 grant awarded for a two year research grant. Led by Professor Johnson, Imperial College London.
Research Training Fellowships 2015/2016
Our Research Training Fellowship scheme is more than 40 years old and we have now funded 174 fellowships at a total value of over £12 million (around £18.5 million in today’s terms). Our latest Research Training Fellows are carrying out research in the following areas:
Neurodegenerative disorders with brain iron accumulation – finding new treatments
Dr A Papandreou, of the MRC Laboratory for Molecular Cell Biology, University College London and Developmental Neurosciences Unit, UCL Institute of Child Health, London, was awarded £230,000 to investigate disease mechanisms and screening for treatments in beta-propeller protein-associated neurodegeneration (BPAN).
This fellowship is co-funded by Action Medical Research and the BPNA (British Paediatric Neurology Association)
Crohn’s disease and ulcerative colitis: how do the foods children eat affect their disease?
Dr H Dogra, of the Centre for Digestive Diseases and the Centre for Immunology and Infectious Diseases, Blizard Institute, Barts and the London School of Medicine and Dentistry, Queen Mary University, was awarded £156,471 to study the mechanisms of immune modulation by nutrient sensing in the intestinal epithelium.
Systemic lupus erythematosus in children
Dr K Webb, of the Arthritis Research UK Centre for Adolescent Rheumatology, Rayne Institute, University College London and the Department of Paediatric Endocrinology, Institute of Child Health, University College London, was awarded £206,806 to investigate the link between puberty, the immune system and childhood onset systemic lupus erythematosus.
Tackling a rare condition that robs children of their ability to talk and understand speech: Landau Kleffner syndrome
Dr S F A Ngoh, of the Developmental Neurosciences, Institute of Child Health, Institute of Neurology, National Hospital for Neurology and Neurosurgery and School of Pharmacy, University College London, was awarded £161,305 to unravel molecular genetic causes and disease mechanisms in Landau Kleffner Syndrome.
None of our work would be possible without the generosity of people who make donations, raise funds and take part in events, as well as our trust and corporate partners.