2016 Research Projects
We are funding over 75 projects (including Research Training Fellowships) at leading hospitals, universities and specialist centres across the UK. Projects we’ve funded over the past 12 months include research into preterm birth, necrotising enterocolitis (a serious bowel condition affecting premature babies), birth asphyxia (when babies are deprived of oxygen during birth), epilepsy, cystic fibrosis, sickle cell disease and several rare inherited conditions including neurodevelopmental disorders.
Charcot-Marie-Tooth disease - an inherited neurological disorder £199,918 grant awarded for a three year project. Led by Professor Bennett , University of Oxford.
Helping children who were born with cleft palate to speak clearly £42,739 grant awarded for a 15 month project. Led by Dr Cleland, University of Strathclyde.
X-linked ichthyosis - an inherited skin disease £116,230 grant awarded for a two year project. Led by Professor O’Toole, Queen Mary University of London.
Food allergy - does early introduction of food allergens reduce the risk? £151,338.00 grant awarded for a three year project. Led by Professor Lack, King’s College London.
Preterm birth - 'sticky mittens' to aid learning and development £134,594.00 grant awarded for a three year project. Led by Dr Ford, Anglia Ruskin University, Cambridge.
Cerebral palsy - monitoring hip development £151,551 grant awarded for a three year project. Led by Dr Shortland, King’s College London.
Inflammatory bowel disease in children - predicting disease severity £100,000 grant awarded for a two year project. Led by Dr Zilbauer, University of Cambridge.
Craniosynostosis: improving diagnosis and care for children with this rare condition £173,162 grant awarded for a 30 month research project. Led by Dr Twigg, University of Oxford.
Necrotising enterocolitis: protecting newborn babies from this life-threatening bowel problem £26,262 grant awarded for a one year research project. Led by Associate Professor Juszczak, University of Oxford.
Vision in children born to mothers taking methadone in pregnancy £136,730 grant awarded for a two year research project. Led by Dr Hamilton, University of Glasgow.
Perrault syndrome: working towards new treatments for children with this rare condition £161,875 grant awarded for a three year research project. Led by Professor Newman, University of Manchester.
Sickle cell disease: could an asthma medicine improve children’s intellectual abilities? £199,992 grant awarded for a two year research project. Led by Professor Kirkham, University College London.
Brain damage at birth: could a diabetes medicine be protective? £193,585 grant awarded for a three year research project. Led by Dr Rahim, University College London.
Neurofibromatosis type 2: finding new treatments for young people with this rare and disabling disease £65,061 grant awarded for a two year research project. Led by Dr Ammoun, Plymouth University.
Epilepsy: are night-time breathing problems disrupting children’s sleep? £43,868 grant awarded for a two year research project. Led by Dr R Urquhart, University of Edinburgh.
Premature birth: predicting who’s at risk £91,171.00 grant awarded for a 16 month research project. Led by Professor Klein, University College London.
Rare diseases: finding a way to help more children £197,474 grant awarded for a three year project. Led by Dr Jungbluth, King’s College London.
Cystic fibrosis – understanding how a common bacterial infection persists in the lungs £185,269 grant awarded for a 30 month research project. Led by Professor Fothergill, University of Liverpool.
ADHD – treatment with brain stimulation £199,999 grant awarded for a three year research project. Led by Dr Rubia, King’s College London.
Research Training Fellowships 2015/2016
Our Research Training Fellowship scheme is more than 40 years old and we have now funded 174 fellowships at a total value of over £12 million (around £18.5 million in today’s terms). Our latest Research Training Fellows are carrying out research in the following areas:
Neurodegenerative disorders with brain iron accumulation – finding new treatments
Dr A Papandreou, of the MRC Laboratory for Molecular Cell Biology, University College London and Developmental Neurosciences Unit, UCL Institute of Child Health, London, was awarded £230,000 to investigate disease mechanisms and screening for treatments in beta-propeller protein-associated neurodegeneration (BPAN).
This fellowship is co-funded by Action Medical Research and the BPNA (British Paediatric Neurology Association)
Crohn’s disease and ulcerative colitis: how do the foods children eat affect their disease?
Dr H Dogra, of the Centre for Digestive Diseases and the Centre for Immunology and Infectious Diseases, Blizard Institute, Barts and the London School of Medicine and Dentistry, Queen Mary University, was awarded £156,471 to study the mechanisms of immune modulation by nutrient sensing in the intestinal epithelium.
Systemic lupus erythematosus in children
Dr K Webb, of the Arthritis Research UK Centre for Adolescent Rheumatology, Rayne Institute, University College London and the Department of Paediatric Endocrinology, Institute of Child Health, University College London, was awarded £206,806 to investigate the link between puberty, the immune system and childhood onset systemic lupus erythematosus.
Tackling a rare condition that robs children of their ability to talk and understand speech: Landau Kleffner syndrome
Dr S F A Ngoh, of the Developmental Neurosciences, Institute of Child Health, Institute of Neurology, National Hospital for Neurology and Neurosurgery and School of Pharmacy, University College London, was awarded £161,305 to unravel molecular genetic causes and disease mechanisms in Landau Kleffner Syndrome.
None of our work would be possible without the generosity of people who make donations, raise funds and take part in events, as well as our trust and corporate partners.