Latest research | Children's Charity | Action Medical Research

Latest research

Latest research

We are funding over 75 projects (including Research Training Fellowships) at leading hospitals, universities and specialist centres across the UK. Projects we’ve funded over the past 12 months include research into preterm birth, necrotising enterocolitis (a serious bowel condition affecting premature babies), birth asphyxia (when babies are deprived of oxygen during birth), epilepsy, cystic fibrosis, sickle cell disease and several rare inherited conditions including neurodevelopmental disorders.

2016 Research Projects

Craniosynostosis: improving diagnosis and care for children with this rare condition £173,162 grant awarded for a 30 month research project.  Led by Dr Twigg, University of Oxford.

Necrotising enterocolitis: protecting newborn babies from this life-threatening bowel problem £26,262 grant awarded for a one year research project.  Led by Associate Professor Juszczak, University of Oxford.

Vision in children born to mothers taking methadone in pregnancy £136,730 grant awarded for a two year research project.  Led by Dr Hamilton, University of Glasgow.

Perrault syndrome: working towards new treatments for children with this rare condition £161,875 grant awarded for a three year research project.  Led by Professor Newman, University of Manchester.

Sickle cell disease: could an asthma medicine improve children’s intellectual abilities? £199,992 grant awarded for a two year research project.  Led by Professor Kirkham, University College London.

Birth asphyxia – finding medicines to protect the newborn brain £193,585 grant awarded for a three year research project.  Led by Dr Rahim, University College London.

Neurofibromatosis type 2: finding new treatments for young people with this rare and disabling disease £65,061 grant awarded for a two year research project.  Led by Dr Ammoun, Plymouth University.

Epilepsy: are night-time breathing problems disrupting children’s sleep? £43,868 grant awarded for a two year research project.  Led by Dr R Urquhart, University of Edinburgh.

Premature birth: predicting who’s at risk £91,171.00 grant awarded for a 16 month research project.  Led by Professor Klein, University College London.

Rare diseases: finding a way to help more children  £197,474 grant awarded for a three year project.  Led by Dr Jungbluth, King’s College London.

Cystic fibrosis – understanding how a common bacterial infection persists in the lungs £185,269 grant awarded for a 30 month research project.  Led by Professor Fothergill, University of Liverpool.

ADHD – treatment with brain stimulation £199,999 grant awarded for a three year research project.  Led by Dr Rubia, King’s College London.

Autumn/winter 2015

Summer 2015

We teamed up with Great Ormond Street Hospital Children’s Charity to jointly fund 13 different projects. Through this partnership we’re aligning our efforts to do more to tackle the challenges disease and disability present for children by funding some of the best medical research across the UK.

We are also funding a project on preventing preterm labour.

Research Training Fellowships 2015/2016

Our Research Training Fellowship scheme is more than 40 years old and we have now funded 174 fellowships at a total value of over £12 million (around £18.5 million in today’s terms). Our latest Research Training Fellows are carrying out research in the following areas:

  • Neurodegenerative disorders with brain iron accumulation – finding new treatments 
    Dr A Papandreou, of the MRC Laboratory for Molecular Cell Biology, University College London and Developmental Neurosciences Unit, UCL Institute of Child Health,  London, was awarded £230,000 to investigate disease mechanisms and screening for treatments in beta-propeller protein-associated neurodegeneration (BPAN).
    This fellowship is co-funded by Action Medical Research and the BPNA (British Paediatric Neurology Association)
  • Crohn’s disease and ulcerative colitis: how do the foods children eat affect their disease?
    Dr H Dogra, of the Centre for Digestive Diseases and the Centre for Immunology and Infectious Diseases, Blizard Institute, Barts and the London School of Medicine and Dentistry, Queen Mary University, was awarded £156,471 to study the mechanisms of immune modulation by nutrient sensing in the intestinal epithelium.
  • Systemic lupus erythematosus in children
    Dr K Webb, of the Arthritis Research UK Centre for Adolescent Rheumatology, Rayne Institute, University College London and the Department of Paediatric Endocrinology, Institute of Child Health, University College London, was awarded £206,806 to investigate the link between puberty, the immune system and childhood onset systemic lupus erythematosus.
  • Tackling a rare condition that robs children of their ability to talk and understand speech: Landau Kleffner syndrome
    Dr S F A Ngoh, of the Developmental Neurosciences, Institute of Child Health, Institute of Neurology, National Hospital for Neurology and Neurosurgery and School of Pharmacy, University College London, was awarded £161,305 to unravel molecular genetic causes and disease mechanisms in Landau Kleffner Syndrome.


None of our work would be possible without the generosity of people who make donations, raise funds and take part in events, as well as our trust and corporate partners.

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