Real stories | Action Medical Research

Real stories

Toby, Corey and Izzy's story

Juvenile Batten disease

Discovering that three of their children have the devastating, rare condition juvenile Batten disease has, says mum Dee, left the family feeling numb.

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Sophia's story

Pregnancy complications and premature birth

Francesco's story

Landau Kleffner syndrome

Emily's story

Premature birth and pre-eclampsia

Sam and Josh's story

Autism spectrum condition

Jessica's story

Hypoplastic Left Heart Syndrome (HLHS)

Joey's story

Brain cancer

Henry's story

Down syndrome

Kira's story

Acquired brain injury

Skye's story

Brain tumour

Tom’s story

Duchenne muscular dystrophy

Aiden's story

Hypoxic-ischaemic encephalopathy (HIE)

Emma's story

Congenital hypothyroidism

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