Real stories | Action Medical Research

Real stories

Eva's story


Life is challenging for little Eva who has a rare condition known as ataxia. She has problems with strength, balance and co-ordination, tires easily and suffers from a tremor that becomes more pronounced when she moves, for instance when reaching for a toy.

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Iris and Tom’s story

Pre-eclampsia and premature birth

Daisy's story

Premature birth

Aiden's story

Hypoxic-ischaemic encephalopathy (HIE)

Sophie's story


Noah's story

Landau Kleffner syndrome

Sophia's story

Pregnancy complications and premature birth

Ioan's story

Tourette syndrome

Toby, Corey and Izzy's story

Juvenile Batten disease

Jessica's story

Hypoplastic Left Heart Syndrome (HLHS)

Joey's story

Brain cancer

Henry's story

Down syndrome

Skye's story

Brain tumour

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