Real stories | Action Medical Research

Real stories

Kai's story

Primary ciliary dyskinesia (PCD)

Children like Kai, 12, who has the rare lung condition primary ciliary dyskinesia (PCD) have a persistent cough from birth and face a lifetime of recurrent chest infections. They often develop hearing loss and permanent lung damage. Treatment with antibiotics and physiotherapy to clear mucus from the lungs helps, but sadly there is no cure.

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Eva's story


Tom's story

Cerebral palsy

Aiden's story

Neonatal encephalopathy (NE)

Sophie's story


Noah's story

Landau Kleffner syndrome

Sophia's story

Pregnancy complications and premature birth

Ioan's story

Tourette syndrome

Jessica's story

Hypoplastic Left Heart Syndrome (HLHS)

Joey's story

Brain cancer

Tom’s story

Duchenne muscular dystrophy

Emily's story

Premature birth and pre-eclampsia

Emma's story

Congenital hypothyroidism

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