Real stories | Action Medical Research

Real stories

Robbie's story

Cleft palate

Robbie was born with a cleft palate and, even after surgery and speech and language therapy, his speech can be difficult to understand. “Older children ask, ‘Why do you talk funny?’ and that’s hard for a teenager to deal with,” says his mum Geraldine.

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Eva's story


Kai's story

Primary ciliary dyskinesia (PCD)

Tom's story

Cerebral palsy

Aiden's story

Neonatal encephalopathy (NE)

Sophie's story


Noah's story

Landau Kleffner syndrome

Sophia's story

Pregnancy complications and premature birth

Ioan's story

Tourette syndrome

Jessica's story

Hypoplastic Left Heart Syndrome (HLHS)

Joey's story

Brain cancer

Tom’s story

Duchenne muscular dystrophy

Emily's story

Premature birth and pre-eclampsia

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