Real stories | Action Medical Research

Real stories

Elijah's story

Necrotising enterocolitis (NEC)

Elijah was born extremely prematurely at 25 weeks and three days, weighing less than 2lbs. Tragically, he lived for just 37 days after contracting the devastating bowel infection necrotising enterocolitis (NEC).

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Eva's story


Kai's story

Primary ciliary dyskinesia (PCD)

Robbie's story

Cleft palate

Tom's story

Cerebral palsy

Aiden's story

Neonatal encephalopathy (NE)

Sophie's story


Noah's story

Landau Kleffner syndrome

Sophia's story

Pregnancy complications and premature birth

Ioan's story

Tourette syndrome

Jessica's story

Hypoplastic Left Heart Syndrome (HLHS)

Joey's story

Brain cancer

Tom’s story

Duchenne muscular dystrophy

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