Privacy policy | Action Medical Research

Privacy policy


This privacy notice sets out the way we process your information and details our privacy policy. We’ll keep this page updated to show you how we use your personal information so that you can be confident when sharing your information with us that it will be only used for what we say here.

Who we are

We are Action Medical Research a UK charity saving and changing children’s lives through medical research. Our registered charity numbers are 208701 in England and Wales, and SC039284in Scotland. We are also registered as a company in England and Wales under registration number 549089.

What information do we generally collect?

This will depend on the nature of your interaction with Action Medical Research but is likely to include some of the following information. This information may be collected from post, digital sources such as our website or social media sites, telephone or SMS.


Contact details

Date of birth

Email address

Social media details

Bank account details – where you are entering into an agreement to make a regular donation or payment to the charity we may need your bank details. Where we ask you to make a payment on our website the charity does not record this information and it is not stored on our systems.

Payment processing online of debit and credit card payments are managed externally by Worldpay on behalf of the charity.

If you are taking part in one of our Action events, we may require additional information such as next of kin information. If next of kin information is captured this is only used in connection with the specific event(s) and is deleted no later than 28 days after the event has taken place.

What do we do with the information you supply?

We use the information you supply to:

  • Fulfil and administer orders for goods, services and events
  • Administer donations, legacies and other gifts
  • Communicate with you about the work of the charity, its fundraising and other areas that we think may be of interest to you (if you have told us you wish to hear from us).

We may also:

  • analyse your personal information to create a profile of your interests and preferences so that we can contact you with information relevant to you. We may make use of additional information when it is available from external sources to help us do this effectively
  • contact you if you complete but don’t submit an online form to see if we can assist with any problems you may be having with our website.
  • analyse how visitors use our website to improve the user experience of website visitors
  • use publicly available sources to keep your records up to date; for example, the Post Office’s National Change of Address database.


Who do we share information with?

Action Medical Research will not disclose any of your personally identifiable information, except when we have your permission such as when we are using a third party to administer your regular gift, make submissions to HMRC to claim gift aid on eligible donations, when we are working with tour operators who administer an event on our behalf or under special circumstances when we believe in good faith that the law requires it.

How long do we retain information?

We hold your information only as long as necessary for each purpose we use it.  


  • Under current HMRC rules we will need to retain your gift aid declarations and details of any gifts for six years after the date of your last gift to the charity.
  • Next of kin information is only held for up to 28 days after the event has been completed then this information is removed from our systems.
  • If you request that we stop sending you marketing materials we will keep a record of your contact details and appropriate information to enable us to comply with your request not to be contacted by us. 



We will make it clear on webpages or documents when we are asking for your consent to hold your information. We will ensure always that you are as fully informed as possible at the time on what we do with your information, with whom it may be shared and how long we will keep it, this is in line with the requirements of the current Data Protection Act and other relevant legislation.

How secure is my data?

We are committed to keep your personal data safe and secure and will never sell or swap your information with other charities or organisations.

Action Medical Research uses industry standard efforts to safeguard the confidentiality of your personally identifiable information on our website, such as firewalls and Secure Socket Layers. We make every effort to protect the loss, misuse, and alteration of the information under our control. In addition, we always use a secure connection when collecting personal financial information from you. However, no data transmission over the Internet can be guaranteed to be 100 per cent secure.

If you use an Action Medical Research user account on our website your account is password-protected so that only you and those you designate can access it and view the member information relevant to your account. Ultimately, you are responsible for maintaining the secrecy of your passwords and any account information. We also do everything in our power to protect your information off-line, and only authorised personnel can view your data.

When we use external companies to collect or process personal data on our behalf we do comprehensive checks on these companies before we work with them, and put a contract in place that sets out our expectations and requirements.   

We may need to disclose your details if required to the police, regulatory bodies or legal advisors. 

We will only ever share your data in other circumstances if we have your explicit and informed consent.  


Website cookies

When visiting the Action Medical Research website, cookies are used to store certain information to make the site function and improve your overall experience of our site.

By using this website you accept to allowing us to store these cookies. All of the information stored in the cookies are anonymous and never contain personal information.




Google Analytics


These cookies are used to collect anonymous information about how visitors use our site. We use this information to improve your experience.

Action Medical Research


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Website links to third parties

We cannot be held responsible for the privacy policies of third party websites and we advise users to read the privacy policies of other websites before registering any personal data.

Keeping your information up to date

The accuracy of your information is really important to us. We want to ensure that we are able to communicate with you in ways that you are happy with, and to provide you with information that is of interest. If you wish to change how we communicate with you, or update the information we hold, then please contact us:

email us at:

write to us at: Supporter Services, Action Medical Research, Vincent House, North Parade, Horsham, RH12 2DP

call us on: 01403 210406 (Mon-Fri 9am-5pm)

You may also chose to stop receiving further emails from the charity at any time by clicking the unsubscribe link at the foot of marketing emails from the charity, but please be aware we will still email you with updates about any charity events that you have registered to take part in, so that you have latest joining and safety information.

Right of access and correction of your information

You have a right to ask for a copy of the information we hold about you, although we may charge £10 to provide this.  If you spot any mistakes, please let us know and we will correct them.

If you want to access your information, send a description of the information you want to see and proof of your identity by post to Supporter Services, Action Medical Research, Vincent House, North Parade, Horsham, West Sussex, RH12 2DP.

We do not accept these requests by email, but if you have any questions please send these to  and for further information see the Information Commissioner’s guidance

Changes to this Policy

We may change this Privacy Policy from time to time.  If we make any significant changes in the way we treat your personal information we will make this clear on the Action Medical Research website or by contacting you directly.

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